Wednesday, January 22, 2014

Vitiligo and Me (#1) - English

This post took a long time to write and publish. It takes everything to brought myself here.
But I want to all the girl out there who has the same story as me, know that they are not alone.
Here is my story, in English post.

At the age of 19, I knew that I have Vitiligo since 13yo.
A skin disorder that happen when your immune system mistakenly attacks some part of your own body. In Vitiligo, the immune system destroys the melanocytes (pigment color in skin), causing white albino parts in skin.
The cause is not yet to be found as well as the cure. And because it is connected with genetic and auto immune system, means this disease is incurable.
The sky felt like crumble into my head. The words "incureable" and "can grow fast" were like a bullet into my head.
I struggled years to get the cure. But nothing changed until now.

Now, I'm working on my feelings, on my self esteem.
However, I do have faith, that someday I will woke up in morning, seeing mirror, and everything is okay and normal.
I never give up on believing miracle. The fog should lift very soon and things will begin to fall into place and to make sense. I learned that I am perfectly healthy. I still can do so many things in life, walk, work, eat, laugh, sport, shopping, sooo many things. And the most important thing is that I still can be friends with other. I will not pass this disease to other people, because Vitiligo does not contagius.
I repeat Vitiligo does not contagious or transmitted.
So I don't really have big problem actually.
It's just I'm different with others.

Well I lied. It is a big problem.
I bet we girls have thousand reason to be worried. Although Vitiligo is usually not harmful medically, its emotional and psychological effects can be devastating. We girls who are often particularly concerned about their appearance, can be devastated by widespread Vitiligo.
It is heart breaking to know that this will change me someday. But I promise that I will be the same person inside. I will not let this shit bitch controlled and destroyed my life. Oops, sorry, inappropriate words! :)
Well yes I hate Vitiligo so much!
However now I realized that this is the part of me. I couldn't blame Cosmos. Vitiligo makes my connection with God and family getting closer.
I once write down the positive things and blessings I got from this disease, and I lost numbers. There are sooo many.
See, there are always good thing behind every misery, depends on our perspective.

This post goal is to make people aware of Vitiligo.
It is important that people become aware of this disorder. This can play a role in empowering people with Vitiligo like me to take more control over their personal lives and their health and well-being.
Vitiligo disorders are hurt enough, our heart is breaking everyday by only seeing a mirror. Our nights are hard worrying about how others will react tomorrow, what part of my skin will affected tomorrow. It's gonna be harder if you people alienate us.

We are obviously not normal, but inside, we are.


This post also published in Bahasa Indonesia, below. :)

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